We want to thank all of you for your kind words and support. As we previously mentioned, Jonathan has now been home for five months. We’ve begun weaning him off some sedating medications and he seems to be a little more alert and is not having as many periods of agitation. At times he shows a like or dislike for certain stimuli. For instance, he enjoys certain textures like dry rice and beans but does not like cotton balls. With the nice weather we’ve been having, Jonathan has been enjoying just being outside and riding in his stroller, so our family has enjoyed a few hours in the backyard.
Despite the improvements mentioned above, Jonathan’s overall condition remains unchanged. He’s still unable to move voluntarily, walk, talk or communicate. He still relies on his g-tube (tube surgically inserted in his stomach) for food and medication.
We recently went to Canada to explore a new therapy, called Advanced Bio-Mechanical Rehabilitation or ABR. It has shown promising results for other brain injured children. Jonathan will begin the therapy this week. If you’d like to learn more about the program, the web site is www.blyum.com . The cost of the program is $10,000 a year which is not covered by insurance (big surprise!)
The Mom’s Club Lula belongs to just held a wonderful spa benefit for Jonathan. The vice president Patti Dalessio organized the event with the help of 17 volunteers. It was a very successful event that was well attended and enjoyed by all. Thank you to everyone who helped.
Our great neighbors have arranged a benefit for Jonathan. It is a golf outing with dinner dance and silent auction to be held on September 28, 2007 at the Bucks County Country Club, in Jamison, PA. There are sponsorships available. Please contact Suzanne Panettieri at parenterprises@comcast.net and provide your name and address to receive your personal invitation.
As always we thank you for your continued support.